Tag Archives: Terminal illness

Sunday Spotlight: Camp Soaring Eagle

If you are an old timer around this blog, you’ve heard of Camp Soaring Eagle. It was one of the main beneficiaries of our wedding and a truly special organization to us. If not, it is an organization that sends seriously ill children to camp. The camps are medically based so that they are safe for the children who are facing various illnesses including cancer, asthma, and muscular dystrophy to name a few, but they are similar in every other way to any other camp for children. The sessions are filled with crafts, horse back riding, archery, and various other activities all meant to ensure that for at least one weekend these kids can just be kids. Kyle and I have had the pleasure to volunteer with the organization and have the opportunity to interact with the children. This weekend we will be unit leaders for the oncology camp session. I will have a group of 6-7 year olds and Kyle will have a group of 13-16 yr olds. We are guaranteed to laugh, play, get dirty and end up absolutely exhausted at the end of the weekend!

It seemed fitting to do my Sunday Spotlight on them even though I already have talked about them a bunch of times. However I know the impact they have made to both these children and their families and so if even one new person finds out about them, it will be worth it!

DSC_1832Give them a “Like” on Facebook and help spread the word about this amazing organization for children!

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East Coast Wedding Events

It is just a mere 3 days before Christmas, so it seems appropriate to share a few heart warming things going on in the wedding world specifically pertaining to those living on the East Coast.

The first relates to a wonderful organization in the world of charities that grants wedding wishes to couples suffering from terminal or serious illnesses. The organization is called Wish Upon a Wedding and there are chapters popping up all over the US. When you are ill, a wedding may be the furthest thing from your mind. Couples are likely short on cash due to medical expenses, short on time and lacking energy. However the desire to be married to the person they love is no less important. Wish Upon a Wedding strives to give couples the wedding of their dreams with no cost or major time commitment on their part. The generous vendors involved handle all the details and give up their time to insure the couple creates a lasting memory. The New Jersey chapter has recently launched and they are having a little party to celebrate! If you are in the area it would be a great opportunity to support a wonderful cause and meet some truly generous people in the wedding industry. I have also put the details in the events section of the blog.

Next up is a wonderful giveaway sponsored by Michael Maler Photography and presented on the She Said Yes Blog (soon to be Lovely Little Details). In order to give you the full impact of this giveaway and why it came about, I wanted to present Michael’s original post (and one of his gorgeous photos).

From Michael Maler: Once upon a time there lived a little boy and a single mother. The mother worked tirelessly to provide for her son and constantly sacrificed her needs for his.

At the time, the mother and little boy did not have a home to call their own. Sometimes they would stay at a relatives, and other times at a family friend’s. This did not matter to the little boy. He loved being around his family and could find adventure no matter where they were.

One day, the mother sat the little boy down. With a tear in her eye, she told him that she had lost her job and they needed to move to a shelter temporarily. The boy didn’t quite understand, but no matter where his mother was he knew things would be ok. While at the shelter, the little boy enjoyed playing with puzzles, eating family style dinners with the other residents, and sleeping in a bunk bed close to his mother. Life to him was normal.
Soon it was Christmas and the mother and little boy left the shelter to spend the night at the boy’s grandparents house. When they arrived, the little boy was so excited to see presents under the Christmas tree. Christmas Day was very special to the little boy. Not only was it when Santa came, but it was also his birthday.
To his amazement, Santa had brought him two gifts. A pair of Ninja Turtle Gloves, and a new football. To him, they were the best presents ever.
That little boy was me.
Not many people have heard this story and I will forever be grateful for my mother, family, the volunteers at the Spooner House in Derby, Connecticut, and the Toys for Tots program.
My experience in life has taught me to always give back. There are so many people in need, and even the smallest contribution can make a difference. So with that, Marcie and I are proud to announce a promotion we are calling “A Wedding Wish.”
Times are tough, and for some they are barely making ends meet. This promotion will grant one couple who really need assistance, a free wedding photography package. The package will include full day wedding coverage by both Michael & Marcie, a DVD of the high resolution images, and 100 4×6 prints.
To enter, please submit a short story explaining how this could help you, three digital photos of you and your fiancé spending time together, and your contact information to weddingwish@mmaler.com. The winning couple will be chosen by January 31, 2011.
Here are the fine print details:
Entries must be submitted between December 15th, 2010 and January 15th, 2011. The promotion is open to those who’s wedding will be held in CT, MA, RI, or NYC Metro Area. The wedding date must be before January 14th, 2012 and cannot not interfere with a date that has previously been booked. Finally, the selected couple acknowledges that their story and photos will be shared upon selection.
Want to Get Involved?
If any vendors would like to contribute to this promotion, feel free to send an email to mmaler@mmaler.com with the details.
Not a vendor but still want to get involved? We are accepting donations in which the money you contribute will be used towards additional products and services for the chosen couple. To contribute, simply click the donate button below.
We look forward to helping someone in need this holiday season – and with that we cannot do it alone. Please help us by reposting, sharing, blogging, tweeting, etc. Together, we can make a difference.
Happy Holidays!
Love,
If you live in the East Coast Area, help spread the word for both events! Happy Holidays!

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The Impact

Our wedding was a success in every sense of the word. We had a wonderful time, we felt loved, supported and truly special. All the details came together without a hitch. But more importantly the day made a major impact on several charitable organizations which was the plan all along. When we came up with “The Charity Wedding” we really had no idea what we were getting into, we made up the rules and went with it. Planning a wedding is stressful, planning a wedding that doubles as a fund raiser added a whole separate set of work. However I do not think I could have made it through the planning without knowing that it would be doing some good for others. I would not have changed one thing and I would do it again in an instant. The impact of the day is as follows:

  • Somewhere in Africa, a community will drink fresh clean water for the first time ever, thanks to our Charity Water Campaign. This means children will be able to go to school as opposed to spending their day collecting water and disease will be reduced immensely. $980 was raised with thanks in large part to my Grandma’s sorority sisters and we donated $40, for a total of $1020.

  • Somewhere in South America at least 4 children that did not have any shoes will receive a new pair, thanks to Tom’s Shoes. We asked the Groomsman to wear them and Kyle and two of them did just that. I also purchased a pair so that one more child would get a pair of shoes!

  • Somewhere in Iraq a soldier knows that a group of people in Arizona care about him and support what he is doing for this country. We had a “Care Package Drive” and shipped two large boxes of things to him. I bet he is still chewing on bubble gum!

  • Several people in the Sedona area got to eat thanks to a very successful food drive.
  • Awareness was raised for both Heart Disease and Autism during two of our monthly charitable efforts.
  • At least one child with a serious illness was able to discover the healing power of laughter thanks to our “Send a Kid to Camp Campaign” which raised $1000.

  • We donated along the way to several of the charities that we highlighted on the blog including the Lymphoma and Leukemia Society, The Steps Foundation, and diabetic children to name a few. The total donated to several charities through the planning process was $409.
  • Several ladies wore red shoes including our bridesmaids in honor of Kim Duncan’s mother who lost her life much too soon to heart disease. Hopefully this allowed some women to think about their hearts and take care of their health!

The Grand Total for money raised or contributed through the whole process: $6429.00

This number does not include what guest’s donated in lieu of gifts or the percentage of money that went to charity from our registry through the I Do Foundation.

We know this process made us better people and gave us a reason to actively find ways to give back. We have had the opportunity to organize several fund raising or charitable efforts that would never have been organized otherwise. We were able to volunteer directly with both Camp Soaring Eagle and Second Chance Center and I do not believe we would have done that if we had not decided to theme our wedding in such a way. This process has been a major blessing to us and we are so grateful to have met all the people that we have along the way. We can not think of a better way to celebrate our love than to come together to show love to others. Many people thought we were crazy which made the support we received from so many others even more important to us. Thank you to everyone who supported this unconventional wedding, without you we would have never succeeded! Our hope is that this process proved that we can all do more to give back in at least some way. A wedding is guaranteed to change a couple’s lives forever, we find joy in knowing that it changed several other lives forever as well.

All because two people fell in love. What can your wedding do?

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Let’s Kick Cancer’s Ass

A beautiful letter ended up in my inbox this weekend from Linda James, wife of Camp Soaring Eagle founder, Max James. In it she details their experience at the recent family camp session at Briar Patch Inn. It would be a lie to say I didn’t have big tear drops in my eyes as I read through it, but even more, a big smile on my face. She sums up the reason we are doing this perfectly, this is the “why” behind The Charity Wedding. I wanted to share it in an effort to let everyone who is involved know that what they are doing matters and it is making a difference. Even more so, I wanted to share this with the people who don’t quite understand the concept just yet. I wanted them to read exactly why we wanted our wedding to be structured in this way.

I also have some adorable wedding photos (so you can start blending the idea of wedding and charity!) from a farm style wedding in Wisconsin shot by Melissa Dunstan. Enjoy!

Good morning Everyone,

I wanted to send you my thoughts about my experience this week at Briar Patch.  We hosted 8 children with cancer and their families. The children ranged in age from 2 to 10 years old.  Most of the children are still going through some pretty tough treatments to fight their battle with cancer.

When Max and I arrived the children were involved a lot of activities. Some were in arts and crafts making airplanes and some were outside playing kick ball. They were having a ball and there were lots of  smiles and laughing all around.  The Moms and Dads and siblings were playing right along with them.

A woman  came right up to me and gave me a big hug and thanked me for allowing her and her family to attend such an incredible camp.  She told me that her son was diagnosed with cancer at the tender age of 3.  He had the most common form of childhood cancer, Retinoblastoma, cancer behind the eye.    He had gone through some pretty tough treatments for over 2 years and last year was found to be cancer free. Then, this year in March, it came back. He is now going through Radiation and Chemotherapy to stop the spread of the cancer.  He is her only son and it looks like she may be having to make a really tough decision. That decision will be whether to take out his eye in order, to perhaps, save his life. I don’t’ know about you, but I can’t imagine having to make that decision about my child. She told me that this week has been the best week in a long time. The stress and pressure of having to deal with a sick child is overwhelming. They spend most of the time in the hospital and when they are not in the hospital, she is dealing with her son being extremely sick.  She told me that this week has given she and her husband a chance to just have fun and forget for a moment about the illness he has.  She then told me something that honestly, I had to fight back the tears while she was speaking.  She said, “how do I tell my son that he may lose his eye?”.   At that point, her son ran up and told me what a great time he had this week with everyone and gave me a hug.  He then told his Mom that he was very tired and he looked really pale and that he needed to rest.  She told me that he is like that most of the time.  He then noticed my cowboy boots and so did she.   He shared with me a story that I would like to share with you.  Last year, the family when to Houston for one of his treatments and they found a card that had cowboy boots on them and it said, “Let’s kick cancers ass”.  She told me that they say that all the time and it is the only time that he can use that bad word. I told him that every time now when I put on my boots , I am going to think of him and repeat that saying.   How about if we all do it?

We had a great dinner and one of the Dads who was there, told Max that this week is the best he and his family had eaten in a very long time and he thanked Max profusely.  I assume that most of the money these families have is going to help their sick child and there is not a lot left over for what we take for granted, like food. You could tell that these families have really bonded together during this week and will stay friends forever.

We then had a camp fire and gave the families an opportunity to share their thoughts with the group.  One of the Dads got up with his two year old daughter, who has cancer.  He told the story of he and his family were getting ready for vacation when she got sick. They found out that she has Leukemia.  He was crying so hard and stated that since May, they have spent most of their time in the hospital. He thanked everyone for allowing his family, he has a another small child as well,  time this week to just have fun. He said, I cannot thank the staff enough for that they have done for my family. Now if that does not tugged on your heart strings, I don’t know what will.

Rob Olsen, Owner of Briar Patch  was there as well and he stated this was the best week he had as well. That these families and their struggles has so touched him, that he is  going to donate a week next year as well.   WOW!!!! What an incredible man.

During the week, the children and their families painted a real Totem Pole. They put their handprints on it and drew things that related to their individual families.  The pole is now cemented in at Briar Patch and you could not find a dry eye in the house during that ceremony.  The families stated when they continue to have rough patches, they will all gather at the Camp Soaring Eagle Totem Pole, whether in person or in the dreams!!!!  By the way, the log for the totem pole, Rob had cut down on his property for us. WOW.

We then had a sing along and the kids were playing instruments and boy was everyone having fun. So were the rest of us, by the way.  Then, Juan brought all the kids up and had them hold hands and make a circle and then the parents and the rest of us formed a circle around them. Juan then stated that this was the circle of love and all the love was to protect the children. What an emotional ceremony.

There were many, many more stories that came from this week, so watch our Facebook page as well as notes from the team. They are all as touching as the ones I shared with you.

At the end of the evening, all the parents were so appreciated of having this week to spend with their families that they could not thank us enough.

This experience for me was  a very emotional one and made me go back to what my friend, Marlo Thomas always says, “Give thanks for the healthy children in your lives and give to those that are not”.

Thank you for sharing our vision.

“If you can change the live of child, you can change the world”.

Linda

(Names were removed to protect the privacy of the families.)

For that little boy and all the children fighting, Let’s Kick Cancer’s Ass. Bringing a little joy and happiness to these families is just a small step but one they will never forget. We are so honored and blessed to be a part of the process.

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Let’s Send a Kid to Camp!

A new month is here and thus we have a new fund raising/awareness effort to work on. If you are like me, you are still in shock that it is June already. If you have children I am sure you are even more baffled as it means your kids are now out of school with the entire summer ahead of them. When I was a kid I looked forward to going to camp, whether it was with a church group or an actual camping trip with friends and family, it definitely signaled summer. Camp is often the only time that children spend a significant amount of time away from their families. This experience teaches kids independence, it builds bonds between peers, and it may even build confidence as camp is generally filled with new experiences and new people. Like many things in life, the ability to spend a week away from home and go to camp is something many children take for granted. There is often one major unspoken prerequisite to attend camp; you have to be healthy. Not only for your sake but for the sake of the other children and the staff. Therefore many children who are living with serious and terminal illness do not get the opportunity to participate in this childhood staple. Of course the inability to attend camp is probably low on the list of things children with serious illnesses and their parent’s worry about, but it is just one more thing that disrupts their childhood. I also know the value of having something super exciting to look forward to. For many kids, the chance to go to camp can mean they have to get better grades while they are in school, perhaps do more chores, who knows but for children with serious illness, having something to look forward to might just be the difference between life and death. Positive thoughts are crucial to everyone’s well being and many kid’s began to feel like a burden to their family and become overwhelmed by their illness. The opportunity not only to attend camp but to attend with other children in similar situations to their own can really be life changing. They will feel accepted, they will feel comfortable, and most importantly, they will just feel like a kid. The ability for a child with a serious or terminal illness to attend camp is complicated. The camp not only needs to have a sophisticated medical team and awareness of the specific conditions of each child, but they also need to be accessible to a hospital in case of emergency. It is costly to run such an operation. However, Camp Soaring Eagle, is taking on the challenge in order to bring desperately needed hope into the lives of children. All children attend camp free of charge and so they rely on donations in order to make that possible. Right now, 200 children are awaiting a scholarship. No child will be turned away, the Camp will find a way but they need help to get there. So to commemorate the start of summer, we are trying to raise $1000 to send one kid to camp. We are trying to change one kid’s life forever. Here are the details:

  • We will be collecting donations at the Red Rock Cafe in the Village of Oak Creek.
  • You can donate cash or check. Make checks payable to Camp Soaring Eagle.
  • You can also donate online at the Camp Soaring Eagle website.
  • The fund raising event will run throughout the month of June! We are on a time crunch as camp season is in full swing, so lets get a kid to camp!
  • Find out other ways you can help out the camp here.

*The May Food Drive was a success, thank you to everyone who contributed.

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Camp Soaring Eagle Update

As many of you know Camp Soaring Eagle is one of the beneficiaries of the Charity Wedding. Kyle and I were asked to be a part of the Steering Committee which is a group of volunteers who will help lead the grassroots effort to raise money, awareness and support for Camp Soaring Eagle and it’s mission. This is one of the reasons we know we made the right decision to do the wedding the way we are and what makes it worth all the extra effort. We are so honored to be a direct part of this Camp’s mission and to help change children’s lives. Had we decided to plan our wedding traditionally I do not believe we would have gotten this opportunity or had the opportunity to meet the amazing people that we met today and continue to meet throughout this process. We had the opportunity to hear from founder, Max James about why he decided to create this camp and why he is passionate about this cause in particular. He said one thing that I will never forget: “In life I have often regretted greed, generosity never.” We hope to live by that thought and leave little space for regret. By the end of his speech and the meeting in general I was holding back tears. Executive Director Jennifer Perry shared a story about a camper. Last year the child was unable to attend Camp because he was too sick. When enrollment time came around this year Juan Morales, Director of Facilities, made him a top priority and called to make sure he would be attending. His parent’s said they didn’t think the child would attend because he (the child) did not think that he would be around this summer. It’s heart breaking to hear a child losing hope as children are generally free spirited and optimistic. Juan called again and encouraged the child to enroll. About ten days later his enrollment form came through on the fax machine creating much joy in the office. Word has it that the child is extremely excited and has a new sense of infused hope to make it to Camp. As we all know attitude is everything, and giving a sick child something to look forward to instead of worrying about dying, can mean the difference between life and death. (Yes, that story had me crying too.)   Anyway there are several upcoming events that you can get involved in to help the Camp fulfill their mission.

The Ryan Thomas Foundation 5K

  • May 8th
  • Tempe Kiwanis Park
  • Begins at 8:30 am

Eddie Money in Concert

  • Cliff Castle Casino, Camp Verde
  • Friday May 21st
  • 7:30 pm
  • Cost: $20, $25, $50 or $150 for a VIP ticket including a reception with Eddie Money himself
  • For Tickets
  • They are working on getting a “Party Bus” to drive up from Phoenix, if you are interested let me know and I can contact you if I hear any more info in regards to that

Golf Classic

  • Monday May 3rd, 2010
  • Tonto Verde Golf Club
  • $200 per person or $600 per foursome
  • Begins at 11:30am and finishes with a barbeque at 5:30pm
  • Cost includes box lunch, range balls, and the after golfing BBQ
  • Contact Maria Bassler for more information or to register 602-206-1256

Tiles for Smiles

  • Ongoing event
  • Imagine Art in Sedona and various Phoenix pottery painting locations
  • $10 to paint a tile
  • What: An opportunity to paint a tile that will then be used to create mirrors which are hung in camper cabins or they are auctioned off to raise funds for the Camp
  • A great activity for the family, a group of friends, or a team building experience for businesses

You can also make a difference by sponsoring a camper

  • $500 to sponsor a camper for the weekend
  • $1500 to sponsor a camper for a week
  • $10000 to underwrite Camper Weekend
  • $20000 to underwrite a Traveling with CSE Program

*I have access to posters and information that you can hang in your businesses or pass out to people who may be interested in helping. If we could find 100 people to donate just $5, we could send a kid to camp for one weekend. The joy that the child would receive would be immeasurable. Let me know if you would like any information or have any ideas of fund raising opportunities.

In addition there is an upcoming Camper’s weekend for children with severe Asthma. It is open to children ages 7-15. There are some additional spots available which they would like to fill. If you have or know a child who has asthma and would be interested in attending a camp with other kids who suffer from Asthma contact Juan Morales 702-218-7034.

I’d like to take a moment to thank our vendors for making this process possible. While we often get the credit for the idea, for us it was just an idea. Without the help and support of our generous vendors this wedding would not be possible. You are the ones that deserve the credit. So thank you, you are changing lives.

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Charity Spotlight- Wish Upon a Wedding

Now here is a charity right up my alley. Wish Upon a Wedding is like the matrimonial adult version of the Make a Wish Foundation. The two are not linked but basically the organization provides weddings or civil unions for couples who are facing a terminal illness. The goal of course is to provide a dream wedding and thus a lifelong memory  and a bunch of joy for the couples and their families. With the stress and expense of terminal illnesses, many couples may not have the time, energy or finances to have a wedding. This organization takes away the stress by taking care of the planning and the expenses by providing the wedding to the couple free of charge. They are just getting started but the popularity of the organization is growing like crazy! They have various chapters in different states and I imagine they are game to open chapters anywhere they can sustain them. Of course they rely on various forms of donations in order to provide the weddings to the couples, including donations from vendors, volunteer help, cash donations and donations of airline miles so that the couple’s family can fly to the wedding destination free of charge. You can also help by simply spreading the word about their mission, you never know who will see it that may be able to help in a big way. You can fan them on Facebook or follow them on Twitter. Definitely stop by the website to look at pictures of the couples, read their stories and stay up to date on all the latest news. The stories will make you cry and smile at the same time. They recently granted their first wedding wish and are working diligently on the next one. I’ve had their logo on my blog for awhile now as they asked people to add it to their blogs to help spread the word. So if you have a blog, help out by simply adding the logo for others to check out!

This is Florence, who was the very first bride to be granted a wedding from the organization. Isn’t she beautiful?

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Camp Soaring Eagle- Charity Highlight

I originally stated that we would take suggestions from vendors as to which charities should benefit and then we would take a vote to determine the top 3. Well, it was suggested that maybe more people would be excited about this if they knew the specific charity that would be benefiting. We decided to select one to test out that notion. We will continue to take suggestions from vendors so that a cause they believe in has the opportunity to benefit and we will pick the top two from their choices.

We chose…Camp Soaring Eagle! Camp Soaring Eagle is a camp in Sedona, Arizona for terminally ill children in the southwest. They are still in the stages of building it and they have had some misfortunes throughout the process. Just recently their office was burglarized and several valuable items were taken. We think they deserve a little bit of good will. The mission of the Camp is truly amazing. They have an excellent medical staff, offer the camp stay free to children, and provide hope and joy to both the children and their families. You can check out the specifics on their website at www.campsoaringeagle.org. They are definitely deserving of our support and we hope to create awareness for their wonderful work.

* If you wish to experience peace, provide peace for another. -Dalai Lama

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